The Saudi Association for Pulmonary Hypertension (SAPH) is a medical and research national group of many medical specialists, who shared a common interest in the field of pulmonary vascular disease. The main goal for SAPH is to increase the awareness and the knowledge of pulmonary vascular diseases in the society and between the medical professionals, and to start variety of research projects in the field of pulmonary vascular disease in the region, in order to improve the understanding, and quantify the size of the problem in this part of the world. SAPH is registered and operates under the Saudi Thoracic Society.

For more information about SAPH, please visit our website at: www.saph.med.sa

SAPH Objectives:

• To investigate the incidence, prevalence, and pathobiology of PVD in underserved areas that, to date, have not been well characterized
• To identify unique characteristics of the illness including its morbidity and mortality
• To establish effective therapies, which will be accessible to the affected patients
• To provide expertise to areas with healthcare disparities that will address issues related to the education and training of healthcare professionals in the area of PVD
• To focus on improving the treatment of PVD, by promoting research, by educating physicians, and by assisting the development and conduct of clinical trials following the highest standards of clinical research
• To provide consultative services to health agencies and industry regarding advancing the treatment of PVD.

Activities: 

• SAPH provides expertise to advise physicians, scientists, health authorities and the healthcare industry regarding medical technologies and pharmaceuticals relevant to PVD
• SAPH is establishing a national database on patients with PVD to allow a meaningful understanding of the similarities and differences in the spectrum of the illness between different regions in the kingdom and other countries in the world
• SAPH has developed a web-based, multilingual educational materials and guidelines on the management of pulmonary vascular disease accessible to people involved in healthcare delivery
• SAPH has been conducting workshops on the modern methods to evaluate patients, determine accurate diagnoses, and monitor the efficacy of treatments

PHA Europe is the umbrella organization for national associations of patients living with pulmonary hypertension (PH) in Europe. It was founded in Vienna, Austria, in 2003 and is registered as an international non profit organization.

Over the years membership has grown steadily and currently stands at 33 patient associations patient organizations from 29 countries: Austria, Belgium (2), Bosnia & Herzegovina, Bulgaria (2), Czech Republic, Denmark, Finland, France, Germany, Greece, Hungary, Israel, Ireland, Italy (2), Latvia, Lithuania, Netherlands, Norway, Poland, Portugal, Republic of Macedonia, Russia, Slovakia, Slovenia, Spain (ANHP), Sweden, Switzerland (2), Ukraine PHA, Turkey.

PHA Europe works together with its members to enhance awareness of PH across Europe, promote optimal standards of care for people living with the disease, ensure the availability of all approved treatments and encourage research for new medicines and therapies.

For general correspondence:
PHA EUROPE
European Pulmonary Hypertension Association
Wilhelmstraße 19
A-1120 Wien
Austria

For invoices:
PHA Europe
Am Lugeck 7
A-1010 Wien
Austria
VAT number: ATU68305327

Phone: (+ 43) 140 237 25
Mobile: (+ 43) 664 228 88 88
Fax: (+ 43) 140 935 28

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www.phaeurope.org

If you or a loved one is living with pulmonary hypertension (PH), we offer information, support, hope and the chance to become active in our community.

The Pulmonary Hypertension Association South Africa (PHSA) was founded by patients, for patients - we are here for you as a source of support, connection and hope. Our patients are a knowledgeable, inclusive and an inspiring group who are eager to listen and share their experiences.

The voice of the PH community is built on the personal stories of patients, caregivers, family and friends and medical professionals. Each of these stories is a powerful tool in educating and raising awareness amongst the general public about PH.

Each of us has a story to tell. Your voice and your story are important to us. The first step in raising PH awareness across the country starts with you. Together we are stronger and can do more: becoming a member of PHSA means that you are helping to create a unified community across the country.

We want to get to know you: become a member of PHSA today.

Living with a rare disease can sometimes feel lonely. But you are not alone. By reaching out to others who live with the same issues every day; who have been there and who have similar experiences, you will connect with a community who offer support, information and hope for the future.

Read about other PH community member’s journeys with PH and share your own.

Pulmonary Hypertension South Africa
Tel nr: 084 580 5000
Fax: 086 6709544

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